FROM EXCLUSION TO INCLUSION
FROM EXCLUSION TO INCLUSION: A CHALLENGING SOCIAL ENTERPRISE!
3rd CARe Europe Conference
17 - 18 June, 2015
Conference Centre National Technical Library
Prague, Czech Republic
CARe Europe is an international network promoting recovery and social inclusion.
The themes for this conference are:
1. Recovery and social inclusion
2. Social Entrepreneurship
3. Challenges for institutional change
One of the important aspects of recovery is to be(come) part of the world (again), to have meaningful activities and social roles. It requires not only efforts from the part of the person but also from the part of the community, in terms of supports and opportunities.
Peer support, family support and professional services which are focused on recovery & inclusion are essential ingredients. New possibilities emerge when the focus shifts from services to the community, from care to entrepreneurship, from social benefits to paid labour.
Special Keynote speaker: Dr Julie Repper
Julie Repper is head of Recovery of Nottinghamshire Healthcare Trust in the U.K., Associate Professor of Recovery at the University of Nottingham and Senior Consultant at the ImROC programme. She is the author of many books, including: Social Inclusion and Recovery: A Model for Mental Health Practice. She was involved in the development of one of the first Recovery Colleges in the U.K.
Wednesday 17th June: 12-18 hours
Site Visit Program in Prague
Visits to community based services and social enterprises
Thursday 18th June
Registration information is on Eventbrite https://www.eventbrite.com/e/3rd-care-europe-conference-from-exclusion-to-inclusion-a-challenging-social-enterprise-tickets-15394789229
Detailed conference program is available on this URL http://thecareeurope.com/?c=conference-2015&l=en
The news about Robin Williams committing suicide really hit me. Not because he was a wonderful actor, who seemed so much the epitome of enjoying life, and not because of the sheer tragedy of a person actually getting to the point of hanging himself because he could not take it anymore, and then the relatives having to find him there, under such circumstances…
No, what hit me was his age: 63. It immediately brought back memories of my father, who like Robin Williams seemed to be enjoying his life, always smiling, always joking, family around, travelling and exploring the world… yet when he was exactly that age, he was in bed and refused to come out, and had only one wish: to die.
My father suffered from depression, and looking back it was much more serious than we realized at that time. He was seeing a psychiatrist at least since he came back from Canada with his family, in 1961. It was an unsolicited return to his homeland, unsolicited because he fundamentally disliked the provincial atmosphere in The Netherlands. Yet he had lost his job in Canada at the Canadian Broadcasting Corporation and thus he had no choice – there was a family to feed. To him this was a cardinal psychological defeat, and although he had a wonderful career in The Netherlands afterwards, being one of the first and prime experts in public relations, this forced return always dominated his life and thinking.
His depression was probably always there, on and off, but we never noticed. Anyway my mother was very good in shielding him, protecting him, and giving him a trustful environment. It really came out in 1979, when he fell ill physically, and immediately suffered a burnout. There are many aspects to the reasons why, which are not important here, but the bottom line is that the very delicate house of cards that kept him going came rumbling down, and nothing was left. He was at home, in bed, and refused to get out. Life had lost all meaning.
We got him on the move, by the sheer luck that I needed somebody to write a biography of Andrei Sakharov and as a former journalist he was the perfect choice to do so. He did, and wrote several more books, among others about the Holodimor in Ukraine, and for more than ten years we worked together. For me this was an unforgettable experience – for him it was probably the same, but also it was the way to battle his depression.
In the end, he stopped working in the late 1990s, because of what we now know was the onset of pre-fontal dementia. He went through many bad years, but the “gift” of dementia – if one may call it such – is that in the end his depression left, and the last one-two years of his life were very happy ones. Yes, he was demented, but he was happy, humorous, almost the man we used to know when he was not depressed and not demented.
Gradually through time, I have come to understand that I have much more of my father’s genes than I knew, or hoped. My father was the favorite parent, for all three of the kids, but at the same time my mother was the eternally optimistic one, almost pathologically optimistic, even irritating at some times. So having my mother’s genes was not really “the best”. On the other hand, she remained active until she died at the age of 87, was unbeatable, always smiling, even during the last moments of her life. She was an unbelievable character, and so having her genes was not really such a bad thing after all.
Consequently, for many years I happily accepted that my mother’s genes were dominant in me, in spite of the negative “irritating” side effects. Yet what I always knew, or felt, was that my father’s depressive tendencies, his fears and anxieties, are equally strong within me. I hid and hide them, both for myself and for others, but they are there, and they are undeniable. I share his fears and anxieties, his inability to function in social environments, his feeling of being lost and never being able to “really” deliver, his feeling that so much more is expected from you and you will never be able to cope. I share his anxiety when travelling, his conviction that you are never “enough”… It is all there, and with time it is getting stronger…
In the early 1980s, my father and I went to New York together. I was just over twenty then, I hardly knew my father because he had always been away (and protected by my mother), but there we went. The morning after we arrived I found him crying on the side of his bed. “I want to go home”, he said, “I can’t do this”. He was so scared, so much in pain that I called the airline company and booked him on the next day’s flight. He calmed down, we went out, did our sightseeing, even went to see some of my USSR-related contacts, and in the evening he said – I will stay one more day, just let’s rebook the ticket. The next morning I would find him in distress, but having booked him on the next day’s flight sort of helped him to cope. That is how we spent four-five days in New York, me as a young adult taking care of his father who before had been God knows what, Chairman of the World Association of Ports and all that stuff… but who was now just his scared father who couldn’t manage traveling anymore.
It is strange how things go. When my father became demented and became untenable, we managed to get him into a mental institution in Rotterdam for evaluation. I will never forget the image. There was my proud father, who had seemed for so many years to be such a strong unbeatable man, sitting at the table, crying, and taking my hand asking whether I could help him because he couldn’t understand anymore what was going on…
Mental illness, or whatever you call it, is so devastating, so painful, and yet it is so close. We all think, or hope that it stays away from us, but it doesn’t. Sooner or later all of us are affected, and it totally changes the outlook on life.
I still miss my father, every day. But I hope he felt that I supported him during the times when he needed it, even when he was no longer able to ask for help.
Robert van Voren
Call for applications for the Jim Birley Scholarship
Jim Birley Scholarship 2015
In November 2013, the Board of the Federation Global Initiative on Psychiatry decided to honor its late Past Chairman Dr. Jim Birley by instituting a scholarship focusing on issues that Dr. Birley was especially committed to: issues of human rights in mental health, and stimulating young mental health professionals and other stakeholders to pay special attention to the rights of persons with mental illness.
The Jim Birley Scholarship will be provided once a year during a high visibility event to a young mental health professional or another stakeholder (user, family-member or carer) who has shown exemplary commitment to the issue of human rights in mental health.
In 2015 one scholarships of 5,000 euro will be awarded. The scholarship is to be used for a cause to be proposed by the winner and should contribute to the strengthening of human rights in the field of mental health.
A committee consisting of four members, including a member of the Birley family, will select the winners from the submitted applications.
How to apply?
Candidates for the Jim Birley Scholarship should write to Human Rights in Mental Health-FGIP and in a letter explain:
- Why they should be eligible,
- Provide details about their background and what they have done to further human rights in mental health, and
- What they intend to do with the scholarship.
Two letters of recommendation should be added.The address: FGIP, P.O.Box 1956, 1200 BZ Hilversum, The Netherlands.
Applications should be submitted before March 15, 2015. The Selection Committee will then select the winners of that year.
The first award ceremony is planned for late June 2015.